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Information and guidance

Long-term health
conditions resources

Explore independent perspectives on living with ongoing physical health conditions.

Living with a long-term condition can affect everyday life, relationships and emotional health. Experiences vary, and people may live with more than one condition. Each link below leads to the original creator or organisation.

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Experiences of living with long-term conditions

These resources consider how physical health and emotional experiences can affect one another. The original creators explain their work in their own words.

Original publisher: NHS Every Mind Matters

Mental health and physical illness

An accessible look at how living with physical illness can affect emotional health, with suggestions for finding support.

Read the NHS resource →

Original publisher: Healthtalk · The DIPEx Charity and academic research partners

First-hand experiences of health conditions

Original interviews and research-based accounts from people sharing what living with illness is like.

Explore experiences on Healthtalk →

Explore long-term health conditions

Choose an area to explore information and support from independent specialist organisations. Each resource links to its original publisher.

Energy, pain and joint conditions

ME/CFS, arthritis, hypermobility and persistent pain

Action for ME

Understanding myalgic encephalomyelitis (ME)

Information about this fluctuating condition, including symptoms and the impact on daily life.

Explore Action for ME →

Arthritis UK

Living with arthritis

Information about day-to-day experiences, relationships, work and access to support.

Explore Arthritis UK →

Pain Concern

Persistent pain resources

Original leaflets, lived-experience articles and podcasts about living with persistent pain.

Explore Pain Concern →

Neurological conditions

Epilepsy, FND, multiple sclerosis and Parkinson's

Epilepsy Action

Mental health support and epilepsy

Original information on the emotional impact of epilepsy and routes to psychological support.

Explore Epilepsy Action →

FND Action

Living with functional neurological disorder

Information, lived experiences and support for people diagnosed with FND, and for those close to them.

Explore FND Action →

MS Society

Living with multiple sclerosis

Information on physical and emotional health, practical support and day-to-day life with MS.

Explore the MS Society →

NHS Inform

Understanding functional neurological disorder

Explains FND symptoms and diagnosis. A diagnosis is based on recognised clinical signs, not simply on tests finding no cause.

Read the NHS Inform guidance →

Parkinson’s UK

Living with Parkinson’s

A self-guided resource about adjusting to diagnosis, daily life and support.

Explore Parkinson’s UK →

Heart, lung and kidney conditions

Respiratory, cardiac and kidney health

Asthma + Lung UK

Living with a lung condition

Guidance about daily life with lung conditions and support for people close to you.

Explore Asthma + Lung UK →

Kidney Care UK

Chronic kidney disease and mental health

Advice about the emotional impact of kidney disease and places to find further support.

Explore Kidney Care UK →

Diabetes and blood conditions

Diabetes and sickle cell disorder

Diabetes UK

Living with diabetes

Information about the practical and emotional demands of diabetes, including support for everyday life.

Explore Diabetes UK →

Sickle Cell Society

Sickle cell information and support

Information and resources for people living with sickle cell disorder and those close to them.

Explore the Sickle Cell Society →

Cancer, digestive and reproductive conditions

Cancer, Crohn's and colitis, endometriosis

Endometriosis UK

Emotional support for endometriosis

Information addressing the emotional impact of the condition and ways to find support.

Explore Endometriosis UK →

Every resource belongs to its original creator and rights holder. Ēpiónē links to their work rather than reproducing it. Inclusion does not imply endorsement by the publisher. Specialist sources provide information and support; personal medical decisions remain with the individual's healthcare team.

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